Monday we had our monthly visit to Dr. Rooney at PPC. She wanted to know how the Strattera was working and to get a weight check on Harrison. He had gained some of his lost weight back, which is good. Overall the report was good. The Strattera seems to be working well enough for us to continue on it at a higher dose. She will gradually increase his dose until the max dose is reached for his size.
Still, the main concern for us is sleep. He seems to have developed this fear or anxiety over going to bed in his bed at night. The child who use to beg or bedtime at 7:30 is now up late most nights. Not only is his sleep being affected but his sister is also suffering. He refuses to stay out of her room and insists on sleeping with her even though we have tried everything we can think of to keep him out of her room. Sensory Hallucinations were mentioned to me following my original post on the subject two blogs ago. Perhaps. Scary stuff. Dr. Rooney prescribed Clonidine to help us with that one. She hopes that if we can break the habit and get him past his anxiety of sleeping in his own bed we can then discontinue use of the Clonidine. Last night, after giving him the Clonidine he did go fast asleep in his bed, but at some point, he still managed to end up in her room. Frustration!!!
I also had a visit yesterday with my therapist. A full day of shrinks! Fun times. He told me that Harrison is physically and mentally incapable of controlling himself until the meds are straight. His biochemistry is so whacked right now that it is not possible. His hope was that if we get the meds straight, the behavior will be easier to control and will all but correct itself in the most part. Until then, I have been advised to keep on keeping on and to try to remain calm and to psychologically distance myself from Harrison as to provide a relapse for me into depression. How do you do this? He told me you don't want H. to know or feel this distance. Any one have a clue about this?
Anyway. This morning was OK. I am hoping H. has a good day at school. Any mom's or dad's out there dealing with this, please contact me! There is little by way of support groups for parents dealing with this and as I am finding out, it is not an easy thing to live with. So little is said about it. No one wants to talk. I guess it is the stigma attached to it. The thought that they should be able to control themselves and that its bad parenting, lazy parenting, just an excuse for bad behavior, blah blah blah. WRONG. Let's talk people!
Tuesday, April 7, 2009
Subscribe to:
Post Comments (Atom)
3 comments:
Blurb.com can "slurp" your blog...then you arrange the text and pictures and they print it as a book! I've started but haven't gotten very far yet. I keep photo albums but thought it would be neat to have the stories to go with the pictures, you know?!
I saw your daughter's drawing in Saturday's (I think) newspaper! On the back with the weather they always put a picture with the child's name/school. I usually don't pay attention but noticed hers for some reason :)
Sorry you're having trouble with all those meds...I don't know much about it but hope everything gets straightened out soon for you (and Harrison)!
i didn't even see the drawing!!! SHoot! i would have saved it.
I hope things are looking up ASAP and that you can connect with other parents who are going through this, too. You guys are in our prayers. ((HUG))
Post a Comment